Rage Against The Dying and Lyme Disease

 

rage against dying and lyme disease

I don't do well in the cold, my Lyme acts up and everything hurts. My body becomes so sensitive to the cold that even my hair hurts. Cold sensitivity is a symptom of Lyme Disease and for me, one of the worst.

Lyme hurts. It's a painful, frustrating, scary disease to have. But what seems to be the worst symptom of Lyme Disease is fear and blame.

You can't live fully in fear of pain.

You can't live in your pain, or in fear of it. You'll find yourself walking around with a binder full of reasons not to live the life you want. You are not living, when you are weighed down by something that has no cure.

No amount of medicine is going to fully take it away.  Instead of living FOR the disease, LIVE and know that when your hands are swollen, those annoying muscle spasms are getting on your last nerve for the day, or you are just tired, that you have a reason to have a little rest, an extra cup of coffee before your walk.

Find something that takes your mind off the pain. I find that when the pain is harsh, I go and spend time in my garden and the work takes my mind off the rest. And sometimes I mix up a nice cup of tea with a “special” tincture – some organic CBD oil and extra sugar. Then I go to sit in my favorite spot, wrapped up in a cozy blanket and let the CBD help me to feel less pain.

* CBD oil is a natural remedy that calms pain and anxiety. Hemp CBD has little to no THC which is what gets you “high”.  So for people looking to relieve pain without pharmaceutical drugs, CBD is a great option. Because Lyme Disease reacts negatively to many pharmaceutical drugs, many Lyme survivors are seeing great results with CBD which can be purchased in almost every state and country.  We love Joy Organics because I feel that the company takes pride in their organic product and are happy to answer any questions you might have. 

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Lucky Us

We are the lucky ones, those who know the answer to what is happening to us.  I have met so many people, who live completely terrified because they do not yet have a diagnosis and they are walking around with terrible symptoms.

I used to feel my heart beat sluggishly and in the middle of the night wonder if it would just eventually stop.  Would it hurt?  Would anyone know? Then I got my answer of what it was, a vavlve issue that is annoying but not deadly. The knowledge helped quell the fear.

Rage against the dying and Lyme

Whenever I get a little down about my future with Lyme Disease, I look to this poem by Dylan Thomas and find my will to fight harder for the life I want.

“Do not go gentle into that good night,
Old age should burn and rave at
close of day;
Rage, rage against the dying of the light.

Though wise
men at their end know dark is right,
Because their words had forked no
lightning they
Do not go gentle into that good night.

Good men, the
last wave by, crying how bright
Their frail deeds might have danced in a
green bay,
Rage, rage against the dying of the light.

Wild men who
caught and sang the sun in flight,
And learn, too late, they grieved it on
its way,
Do not go gentle into that good night.

Grave men, near
death, who see with blinding sight
Blind eyes could blaze like meteors and be
gay,
Rage, rage against the dying of the light.

And you, my father,
there on the sad height,
Curse, bless, me now with your fierce tears, I pray.
Do not go gentle into that good night.
Rage, rage against the dying
of the light.”

Holiday Stress and Lyme Disease.

I know that posts haven't been as regular as they should be.  I've just been a bit tired and distracted. Call it the holiday blues, the winter slow down, stress, or whatever name you want to give it. I've just been tired and distracted.

Many of my readers know that I have Chronic Lyme Disease.  I have this strong belief that the more you focus on being ill, the sicker you feel. So I really try not to give a lot of thought or power to having Lyme and try to focus on being alive instead. Sometimes, however, the symptoms get really thick and closer together and it makes it hard to forget or not focus on it.

I'm so tired!

This month we will celebrate Thanksgiving and then Hanukkah soon after.  So the holidays are here for us and all around us, people are getting their holiday spirit set into full swing. I, however, have just been mentally side-tracked with distractions.  I feel like I have so many things that I need to get done, but I am just so tired that I really just want to curl up with a book and a cup of tea and rest. But even when I do take a nice break and try to relax I feel as if I should be doing more and moving forward.  So it's a back and forth battle.

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I know what I really need to do is to stop thinking cluttered thoughts and clean out the piles and piles of thoughts that are just getting stuck in there and not flowing very well. It's not easy and it's not enjoyable.  But it's needed.

Tips for Managing Holiday Stress

Many of us forget to take care of ourselves when we are stressed and even more during the holidays.  So pre-planning your routines and coping skills is the best way to navigate and care for your needs.

Make time for exercise. – Take a few minutes each day to care for your body.  Yoga, stretching, even a quick workout will boost your energy for the rest of the day and keep you from feeling stiff or sore later.

Go to bed on time. – It might take effort, but making sure you keep your sleep schedule during the holidays is important to your health. When you are fighting Lyme Disease and exhaustion, you are more prone to getting sick easier.

Order instead of making fresh – I've come to realize that my family likes eating. Period.  They don't mind if I order it, make it fresh, or have it delivered.  They just like to have a hot meal… or cold.  Really, they are just glad they don't have to make it for themselves. So I've found a few good bakeries that deliver to my door, I have a couple of meal boxes that come and make my life easier, and I am great at ordering food. Don't sweat the small stuff.


Ask for help. – Like many people, I have a long list of To Do items to get ready for the holidays. Often I feel overwhelmed and stress myself trying to get it all done.  Ask for help! Make a list of things that you can pass off to someone else and take advantage of those who might offer their assistance. Wrapping gifts, setting the table, or just walking the dog… let others help you.

Remember that you don't have to take on everything.

Pick your battles. – You don't have to attend every event you are invited to.  You don't have to engage in every frustrating conversation at the ones you do go to.  You get to choose who and what to share your energy with.

Remember WHY. – We plan these events, say yes to invites, run around trying to get everything done. But why?  I think that sometimes we need to stop and remember the reason that we are doing all of this?  Is it because you enjoy spending time with friends and family? Is it because you love decorating?  Why are you working so hard?

We know this isn't the easiest time for many people and we want to remind you that depression and anxiety are normal and part of living with Lyme Disease. But if you are feeling like you just can't find your joy, please talk with someone.  There are people out there who want to listen and help you navigate your way through it.

We would love to hear your holiday tips for working through Lyme Disease and holiday stress. Share them in the comments!

 

 

Overcoming Lyme Disease by Taking Away Its Power.

There’s been a lot of talk about Lyme disease after a few celebrity voices have come forward speaking about their experiences with this complicated disease. I read each one, hoping that one of them will somehow tell me something I don’t know. I hope that perhaps one of these celebrity voices with their money and influence will somehow have discovered something new that will actually help the hundreds of thousands of people suffering. So far, no luck yet.

03I have Lyme disease. I am in control. Lyme does NOT have me. It’s not going away. I am not going to wake up one day and never experience one of the wacky issues that come with having Chronic Lyme. I will move in and out of treatment. I will always be on the lookout for something new to help control it.

Every once in a while I am reminded of how I used to be. The person that Lyme controlled was sad, scared, and worst of all I felt so guilty about having Lyme and how it was going to be for my family. The issues with Lyme got really bad for a while. I was pretty scared that for the rest of my life I was going to be a victim of this invisible monster that had me in its grips. I wasn’t going to have any choice about the life I lived, I was just going to watch as my body started to fail and I was going to be bed bound as the rest of the world went on without me.

Admittedly, I was so afraid of the sick pathetic thing that I was going to become that I didn’t want to live that long to be a burden to my family.  I didn’t want to be that pathetic secret in the bedroom that my family wanted to forget. I didn’t want to be suicidal. But I didn’t know how to stop it. I know now that depression, anxiety, and suicidal tendencies are not only part of the disease, but also reactions for the tons of medications I took to control the symptoms.

I am so glad that time is over.

I have Lyme disease. I have reoccurring co-infections, Fibromyalgia, anxiety, tremors, migraines, trouble with high and low temperatures, memory issues, attention issues, balance problems, I fall down a lot.  I need help sometimes.  I have a service dog who works to make me feel better and is there when my days are really bad to help me out.  I can't be around sick people.  I have a hard time being still for longer than an hour, so traveling is hard.  But, none of these things make me lazy, stupid, crazy, or seeking attention.  Those words are for people who don't understand and won't even if you tried to explain it.

I learned to let go of the fear of judgment and accepted that I was in control of my disease and how I felt. That's when I found using CBD could let me live a fuller and less painful life without the harsh side-effects that the heavy medications were giving me.

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I am a great Mom. My children understand my disease. And like anyone with a disability, families change and adapt to overcome the limitations. I have heard the sad stories of people shaming the children of Lymies because they don’t understand why the parent isn’t more active with their children. Thankfully I’ve never experienced this in my family. You do what you can, do your best, and accept your limitations.

I love my husband so much that sometimes it hurts. We love to travel and have been doing a lot of it lately.  I love sitting on the beach and letting the warm sunshine warm my muscles and skin.  I am so happy that for right now in my life I have the ability to get out, explore, and understand that this disease doesn’t control me.

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I have a lot of really funny friends, who probably have forgotten I have Lyme. Sometimes I don’t feel like doing much more than reading a great book. And that’s okay. I don’t take much time for being sick.

Lyme isn’t my life.  My life is so much better than something so tiny. I might have Lyme disease, but Lyme does not have me.

Live… Live well… Live free!

 

 

 

Eating for energy when diagnosed with Lyme disease


Lyme disease is a not-so-known disease that is caused by Borrelia burgdorferi bacteria that is transmitted through bites in human beings by infected black legged ticks. The symptoms of Lyme disease are known to be visible within a range of three to thirty days after the tick bites you for the first time.

There can be a wide range of symptoms. In many cases, Lyme disease leads to fatigue and flu-like symptoms. If treated early, Lyme Disease can be treated, but it is exhausting. However, if you are careful with what you eat and how many meals you take in a day, you can do wonders for your energy levels.

Foods for Energy to Fight Lyme Disease

Firstly, it is imperative that you avoid any food that facilitates the growth of the infectious bacteria (or bacteria in general) in your body. A list of such food items which you must absolutely avoid is given below.

  1. Diet rich in sugar

Lyme bacteria feed on sugar. If you eat food rich in sugar, you will help them multiply quickly in your body, and it’ll take longer for you to get better.

  1. Food rich in gluten

Food rich in gluten can also cause a problem if you already have the Lyme bacteria in your body, so it is best to have a gluten-free diet.

  1. Dairy products

Dairy products are rich in lactose and are hard to digest for some people. They can also be highly inflammatory, so it is best to avoid dairy products.

If you avoid these foods, Lyme bacteria will not have anything to feed on, and they won’t be able to multiply. Additionally, external drugs will kill the bacteria within your body so all the food that you eat will give the energy to your body and not the bacteria.

What CAN you eat?

Once you know what NOT to eat, we can move on to the food that would give you high levels of energy to fight the Lyme disease, and recover quickly. Below is a list of the types of food that will benefit you.

Food rich in Omega 3 fatty acids

Having salmon or oily fish that are rich in Omega 3 fatty acids can aid in regaining your energy levels immensely. However, you must go for the fresh ones that are caught in the wild and not the ones that are treated and might have pesticides, hormones, antibiotics or any other chemicals that can be harmful to your body.

Omega 3 rich foods are incredibly vital for your body and will provide tons of energy to you.

Fermented Vegetables

Gut flora plays a vital role in boosting your immune system. Therefore, having fermented vegetables or other traditionally made vegetables can enhance your gut flora. With this, you can ensure that your immune system is working at its best. You must note that an imbalance in the microbiome leads to several inflammatory diseases in the gut. So, including fermented vegetables in your diet can do wonders.

Include green and leafy Vegetables in your Diet

There is no doubt that green and leafy vegetables are great to include in the diet because of the high amount of antioxidants, flavonoids, and carotenoids that they have in them. Therefore, they can help immensely against any cellular damage. Some of the green and leafy vegetables that you can include are collard greens, kale, and spinach. These are great for helping against the joint pain that is a common symptom of Lyme disease.

You can make your diet interesting by cooking exciting meals including the foods mentioned above like:

  • Clear soups with vegetables
  • Smoked salmon with salad
  • Spinach soup with some fatty fish
  • Organic green salad, etc.

If you feel that your food intake and diet are not able to give proper nutrients that your body requires, you can always take some external supplements that will give your body an additional boost that is much needed if you have Lyme disease.

Lastly, trust your body! If a particular kind of recommended food item is making you nauseous or causing uneasiness, you can ditch it. Switch to other alternatives or consult a doctor. With perseverance and right balance of great food and medicinal treatment, you are sure to defeat Lyme disease.

References

Authors Bio – Mitravinda is a Nutritionist at DietChart with a doctoral degree in Food Science and Nutrition. She is a teacher, researcher and an author. Her passion for the subject prompted her to start writing. She blogs on various nutrition-related topics such as diet chart for weight loss, diet chart for weight loss in 7 days, how to remove dark circles in 2 days etc. Through her blogs, she wishes to help people gain a deeper understanding about the relationship between nutrition and health.

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May is Lyme Disease Awareness Month

 

AffiliateLyme1

May is Lyme Disease Awareness month. Simply put, Lyme sucks.  There are so many different variations in each case of Lyme that it is extremely difficult to diagnose. This leaves so many people wandering from doctor to doctor asking what is wrong with them and fearing the worst.  Lyme is not the worst.

My Diagnosis

I was diagnosed with Chronic Lyme disease 15 years ago, after many years of asking “what’s wrong with me?” Finally I had an answer, yet the answer was and still in just as confusing as not having a diagnosis.

Lyme Disease symptoms and awareness

Living with Lyme disease is a constant battle. Sometimes you think you are on the winning side, your symptoms are light, you have a grip on your meds and treatment, and you actually feel pretty normal.

 Wellness and relaxation for your mind and body

But there are also days and weeks that you are on the losing side. Those are the days when you feel like you can only take so much until you have had enough. The disease doesn’t let up, it is always trying something new. And you just have to put your head down and take the punches.

How you can win against Lyme

I have a great support team of family and friends who understand my disease and know when to make me laugh through it.

I know I am truly blessed to have them behind me cheering for me. Living with th thick sticky pain of Fibromyalgia that came with my Lyme disease is hard. I know I have a husband who will hold the world back for me as I push through one more day of feeling sluggish and sick until I can get back on my feet.

Every doctor I have ever talked to has told me that the only way to win against chronic Lyme is to keep a positive attitude. YOU have to want to fight, because Lyme feeds on your fears.

Herxing and making it through.

Through the years I have been a test subject for Lyme treatments. I have gone through the antibiotic treatments, been slapped around hard by the Herx reaction that comes with killing off large portions of the bacteria in my body.

Through the years I've tried several drugs that are supposed to help, Celebrex is my last resort when the inflammation and pain gets intolerable. Sadly, I am one of those people that does not tolerate pharmaceuticals well. I have a very low tolerance for meds.

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But the one thing that has helped when nothing else has is CBD oil.  Taken both orally and topically, it has reduced my pain and inflammation.

In fact, in the last few years I haven’t even been able to get a flu shot. Lyme tends to either mimic the flu or I somehow get a version of the flu. My doctor has teased me about having the “zombie flu” because technically you aren’t supposed to get sick from the flu shots.

The more you know, the better prepared you will be.

Anyways, for the next couple of weeks I want to share some stories, articles, and help people to become more Lyme aware. I hope you’ll learn something and won’t mind too much.

Have a great day,

Love, Crysta - Dancing With Fireflies

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