Category: Lyme Disease

Lyme Disease and Grief make a painful cocktail

Lyme and Grief make for a painful cocktail

  The last few weeks have been extremely stressful and emotional. There has been so many deaths in my circle, both close family and celebrity deaths that struck home.  It’s been a lot to deal with.  My body aches, I have been retreating from physical contact as much as possible.  It’s been hard.   I know I’ve been fighting a touch of…

Lyme Disease moves out of the darkness and into the light

Lyme Disease moves into the light.

Hi everyone, I just wanted to take a few minutes to talk about Lyme disease and how I am so thankful that Lyme disease research has taken steps out of the dark. I’ve had long term Lyme disease probably my whole adult life. It wasn’t until by chance a woman with terrible muscle control who was almost crippled met my mother…

Take time to hear your body. Listen to what it is telling you. It is okay to slow down. #LymeDisease

Slowing Down for Lyme Disease

Sometimes I need to slow down for a bit, listen to my body, understand limits are just chances to slow down and smell the flowers. I have Lyme Disease. I hate having to be held back by something so ridiculous. But, when I over do it, recovering takes time. Last month we welcomed one of our older boys back home. It…

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May is Lyme Disease Awareness Month

  May is Lyme Disease Awareness month. Simply put, Lyme sucks. I was diagnosed with Chronic Lyme disease 12 years ago, after many years of asking “what’s wrong with me?” Finally I had an answer, yet the answer was and still in just as confusing as not having a diagnosis. Living with Lyme disease is a constant battle. Sometimes you…

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Crazy or just the Lyme Disease?

It’s likely that I’ve had Chronic Lyme disease most of my adult life. I’ve been misdiagnosed a few times with MS, Parkinson’s, a possible brain tumor, PCOS, Insulin issues, Chronic Fatigue, and more. But the root of what I have was caused by a tiny tick bite that gave me Lyme Disease. Thankfully I was finally diagnosed.  I have a great doctor…

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Don’t let my face fool you

My face often reflects the discomfort I am in more than I know.  Nothing is “The Matter” it is just that I am fighting discomfort and I have forgotten what my face looks like.  I like to call it my “Bitchy Resting Face” after a funny video I saw on the internet. I bet a lot of people have no idea what…

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Crashing and fighting back

  I don’t feel like writing today. Well, not really. I am really tired. I’ve been traveling, for many it would be a nice long weekend trip, then back to work feeling relaxed. However traveling for me, and others with a chronic illness like Lyme disease, means that at some point I am going to crash. I don’t argue with…

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Lyme disease feels like living with a Magic 8 Ball.

Lyme Disease feels like living with a Magic 8 Ball.  You really never know what you are going to wake up with in the morning. Sometimes you get lucky and it tells you to try again tomorrow and you have a really great day. Sometimes you get the iffy answer that you are just going to have to get dressed…

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More facts about Lyme Disease.

In honor of May’s Lyme Disease Awareness Month, I wanted to share a little bit more about this disease so that for those of you out there who are looking for answers or searching for home might find something comforting. Every day new discoveries are being made about Lyme disease. We will continue to fight for our lives, spread the…

Crazy Lyme talk on Facebook.

    Every May I try to take some time here on Dancing with Fireflies to talk about a topic that is very close to me, Lyme disease. Since being diagnosed in 2002 with Chronic Lyme disease, I have been through the highs and lows with living with a chronic illness. I am truly thankful to actually have that diagnosis…

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