Home » Lyme Disease

Lyme Disease

How Lyme Disease changed my personality

How Lyme Disease Changed My Personality

Share on facebook Share Share on pinterest Pin Share on twitter Tweet When I was younger, before I was diagnosed with Lyme disease I was losing a battle with the Lyme Disease Monster in a war I had no idea I was fighting.  Lyme Disease is evil, there is no other word for it but evil. Because it’s not just a disease of one area, you never know what’s actually happening to… Read More »How Lyme Disease Changed My Personality

Lyme and Spoons

One of the hardest things about having an invisible disease is trying to make it through the day. Some days are routine and other days there are hurdles that you have to get over. But you always have to face starting over again the next morning. There are no days off, no vacation days, no holidays off from being sick. For years I tried to forget about having Lyme.  I… Read More »Lyme and Spoons

Gardening for health

Gardening is my best weapon against Lyme Disease

Share on facebook Share Share on pinterest Pin Share on twitter Tweet I love to garden, but it’s not for the reasons you might think.  Gardening helps me to fight Lyme Disease, improves my mental health, and helps me to feel like I’m contributing to helping the planet and my community. Let’s be honest, I hate mornings, and I really struggle to get out of bed early. Sometimes it is physically… Read More »Gardening is my best weapon against Lyme Disease

Why Talk About Your Challenges?

“When you know your ‘Why’, your ‘What’ has more impact, because you’re walking in or towards your purpose.” – Michael Jr. (This post includes affiliate links. Should you click an affiliate link and make a purchase I may make a small commission at no extra cost to you.)  There are reasons for WHAT I do.  I write because I feel I am… a Writer. But WHY I walk towards that… Read More »Why Talk About Your Challenges?

5 Things I Wish My Friends Knew About Lyme Disease

I’ve had Lyme almost all of my life. It’s a part of me and my day to day.  I know it’s unusual, but often I forget that it is anything different from anyone else. But sometimes there are things I wish my friends knew about my life with Lyme Disease.
My battle with Lyme Disease began before I knew I had it.
Like many people I was misdiagnosed for many years before finally being diagnosed. Everything from MS to Anxiety have been on my medical records.  Lyme is commonly misdiagnosed, leaving people wondering if their friends or family are making up their illness and the victim wondering if they will ever find relief.

I was likely a small child when I was bitten by a tick carrying my future inside it. My body has been fighting an invasion since I was in elementary school. I spent my 20’s wondering why I couldn’t keep up with people my age.  Now I know.
 Sometimes I need to rest to let it catch up.
My “Resting Bitch Face” isn’t what you think.
I live with pain. Every day, every hour, something hurts somewhere.  Sometimes it’s an ache or a dull throb, other times it is the painful sting of inflammation. I manage it the best I can without meds because I know in the long run, the meds are very damaging to my other organs that are also fighting this disease.
I get tired, frustrated that I can’t get up and dance with my friends like I used to, even a little envious of a few of you who can enjoy a few cocktails and night of dancing. But my RBF is judged pretty hard even though I’m actually happy to be able to get out and hang out.
Sometimes I just can’t.
One of the hardest realities of living with Lyme is knowing that your immune system is awful.  You have to measure your strength with expectations.

It is embarrassing to have to message a friend ahead of time who has been complaining about being sick to warn her that you just can’t be with her because you can’t take the risk of getting sick for the next few weeks.
Kids are cool.  But they are also germ magnets and while post parents are used to their little ones cruising from one illness to the next.  Sometimes I just have to take a step back from kid friendly events when I know it is flu or cold season in the schools.  It isn’t because I don’t love the kids, but because I can’t give weapons to the bacteria I am already infected with. 
I’ve even had to turn down coming to see new babies because the siblings were sick with the flu. It was awful.
I don’t go to the gym and I am okay with it.
These days among my friends, everyone is trying to get summer bathing suit ready or in “cruse shape” because some of us are headed on a trip together.  They talk about their marathons, weekend gym dates, and diets they are currently on.  And I smile and listen, I think it’s great that they are excited about it.

But I don’t go to the gym and I don’t diet. 
Instead I am in physical therapy usually twice a week to try to keep my muscles from locking up or to settle the pain in a bad area.  I have regular visits with my doctors to make sure my heart is staying strong and my liver isn’t getting worse. I’ve watched my weight climb up and down with each switch of my medications and cringed when I looked in the full length mirror.  After a workout I’m exhausted for days and in pain for a week. 
I’ve learned to accept that I might never get down to a 7 again, but I will keep fighting a disease that’s entire goal is to kill me. And when I look at my body that’s now patched up with scars from surgeries and battle, I know that I am thankful that today I am not bedridden and I can go walking through the Farmer’s Market to enjoy the sweetness of life without guilt.
You can talk to me about my disease.
I’m pretty sure that most of my friends know I have Lyme. But I don’t talk about it much. Usually because few people actually ask me about it.
I know they must have questions or wonder why I cancel at the last minute a night of dancing and fun. They just don’t ask.  I wish my friends knew that they can come talk to me about my illness and I am happy to answer all of their questions.  Lyme Disease is difficult, but harder when you feel like nobody understands you.

5 Upsetting Truths About Lyme Disease

We didn’t ask for this, a life of questioning, doubting, and wondering how much longer. But a life with Lyme is still a life. Day by day, you learn to live your life beyond Lyme Disease. It’s is hard and frustrating. However, knowing you aren’t alone helps. Truth #1 – Forget It! Living with Lyme means your memory is BAD.  You forget why you walked into a room, who that person… Read More »5 Upsetting Truths About Lyme Disease

How to use CBD everyday and why you should too!

How I Use CBD Everyday To Cope With Lyme Disease

I’ve been on muscle relaxers, pain killers, antibiotics, anti-inflammatories, liver support, thyroid meds, heart meds, and anti-anxiety meds. Western medicine hasn’t been able to help me. But CBD has changed my life and allowed me to live beyond my diagnosis. I was diagnosed with Chronic Lyme Disease in 2003 after years of living in pain, inflammation, and brain fog. I have been on so many medications that now there is… Read More »How I Use CBD Everyday To Cope With Lyme Disease

Cope With Grief

Brain Damage From Lyme Disease

One of the more troubling issues that I have due to having Chronic Lyme Disease is that my brain has suffered some neurological complications. It’s worrisome knowing that your brain has been damaged by a disease without a cure. I often have numbness in my hands or random other places, pain that pops up out of nowhere, a weakness that comes on fast, visual disturbances, stiff neck, and severe headaches.… Read More »Brain Damage From Lyme Disease

Photo Credit: @christinhumephoto

Essential Oils Showing Promise in the Fight Against Lyme Disease

Lyme Disease: The mere phrase invokes a sense of fear and dread of the unknown. This disease is cloaked in mystery, while at the same time, hijacking lives and wreaking havoc on previously healthy bodies. If you’re diagnosed early, your chance of recovery is fairly high, though the symptoms may never completely dissipate. However, if you’re diagnosed late – and we all know how we would rather push through problems… Read More »Essential Oils Showing Promise in the Fight Against Lyme Disease

Tips For A Stress-Free Holiday Season

How To Manage Exhausting Holiday Stress and Chronic Lyme Disease.

I know that posts haven’t been as regular as they should be.  I’ve just been a bit tired and distracted. Call it the holiday blues, the winter slow down, stress, or whatever name you want to give it. I’ve just been tired and distracted. Many of my readers know that I have Chronic Lyme Disease.  I have this strong belief that the more you focus on being ill, the sicker… Read More »How To Manage Exhausting Holiday Stress and Chronic Lyme Disease.

Moving into the darker months with Lyme Disease

Halloween is my favorite time of the year.  I love all things Halloween, the decorations, scary movies, and the candy!  But unfortunately, as Halloween grows closer, the weather gets cold.   And while I know that cold weather doesn’t really bring on colds, the crazy weather does bring on migraines and sinus issues. I’ve been having a few Lymie issues due to the weather.  Headaches are the worst part.  Living with aches and… Read More »Moving into the darker months with Lyme Disease

I Travel Because… Screw You Lyme!

“What’s the worst thing that can happen to you with this disease?” she asked me on our first meeting?
Looking back, she was asking a different question. She honestly had no idea what Lyme disease was and was asking for clarification. But I heard the one I needed to hear. I heard a challenge.

How I Improved My Grammar after Fighting Lyme Disease

Share on facebook Share Share on pinterest Pin Share on twitter Tweet Brain damage or old age, I’m not sure which one. But I’ve noticed that my spelling has gone drastically downhill. I recently discovered Grammarly, a grammar and spelling editor, and I have to say that I have rediscovered my love of writing. This post contains affiliate links that help bloggers like myself to earn a living without costing… Read More »How I Improved My Grammar after Fighting Lyme Disease

Misconceptions of Lyme

I’m thankful and sad at the same time.  I had to tell a friend that I couldn’t hug her when she came in the room.  She was getting over being sick, not my kind of sick, a good sick… one that you feel shitty for a few days with and then move on.

Lyme Disease Check-up

Twice a year I get to go see my doctor and see what’s going on with my Lyme Disease. Sometimes those visits leave me feeling pretty frustrated. Not this one. When you live with Lyme Disease like I do, for as long as I have,  you eventually come to terms that this is your life and you can either feel hopeless or find hope. I’ve been hopeless. In those years… Read More »Lyme Disease Check-up

More facts about Lyme Disease.

In honor of May’s Lyme Disease Awareness Month, I wanted to share a little bit more about this disease so that for those of you out there who are looking for answers or searching for home might find something comforting. Every day new discoveries are being made about Lyme disease. We will continue to fight for our lives, spread the word and demand that Lyme disease isn’t blown off by… Read More »More facts about Lyme Disease.

Lyme Disease isnt Real

My Lyme Story

Through the years I’ve told my Lyme Disease story many times. But recently a new friend of mine asked me to tell her about Lyme and my story, and I realized that maybe I should tell it again.  Getting the information out and telling my story helps to bring understanding and maybe even a step closer to finding a cure for this deadly disease. How it began I was bitten… Read More »My Lyme Story

What’s The Difference Between Lyme Disease and Fibromyalgia?

I was recently asked about Lyme vs. Fibro, and I wanted to share here what my answers were for those who might want to know. Here’s the question – edited for privacy and space: Dear Dancing With Fireflies: A few years after a car accident I was diagnosed with FMS. I haven’t had anything I can take to treat it because I react in very negative ways to the medicine… Read More »What’s The Difference Between Lyme Disease and Fibromyalgia?