There’s been a lot of talk about Lyme disease after a few celebrity voices have come forward speaking about their experiences with this complicated disease. 

May is Lyme Disease Awareness Month,  I hope that perhaps one of these celebrity voices with their money and influence will somehow have discovered something new that will actually help the hundreds of thousands of people suffering. 

03I have Lyme disease. I am in control. Lyme does NOT have me. It’s not going away. I am not going to wake up one day and never experience one of the wacky issues that come with having Chronic Lyme. I will move in and out of treatment. I will always be on the lookout for something new to help control it.

Every once in a while I am reminded of how I used to be. The person that Lyme controlled was sad, scared, and worst of all I felt so guilty about having Lyme and how it was going to be for my family. The issues with Lyme got really bad for a while. I was pretty scared that for the rest of my life I was going to be a victim of this invisible monster that had me in its grips. I wasn’t going to have any choice about the life I lived, I was just going to watch as my body started to fail and I was going to be bed bound as the rest of the world went on without me.

Admittedly, I was so afraid of the sick pathetic thing that I was going to become that I didn’t want to live that long to be a burden to my family.  I didn’t want to be that pathetic secret in the bedroom that my family wanted to forget. I didn’t want to be suicidal. But I didn’t know how to stop it. I know now that depression, anxiety, and suicidal tendencies are not only part of the disease, but also reactions for the tons of medications I took to control the symptoms.

I am so glad that time is over.

I have Lyme disease. I have reoccurring co-infections, Fibromyalgia, anxiety, tremors, migraines, trouble with high and low temperatures, memory issues, attention issues, balance problems, I fall down a lot.  I need help sometimes.  I have a service dog who works to make me feel better and is there when my days are really bad to help me out.  I can't be around sick people.  I have a hard time being still for longer than an hour, so traveling is hard.  But, none of these things make me lazy, stupid, crazy, or seeking attention.  Those words are for people who don't understand and won't even if you tried to explain it.

I learned to let go of the fear of judgment and accepted that I was in control of my disease and how I felt. That's when I found using CBD could let me live a fuller and less painful life without the harsh side-effects that the heavy medications were giving me.


I am a great Mom. My children understand my disease. And like anyone with a disability, families change and adapt to overcome the limitations. I have heard the sad stories of people shaming the children of Lymies because they don’t understand why the parent isn’t more active with their children. Thankfully I’ve never experienced this in my family. You do what you can, do your best, and accept your limitations.

I love my husband so much that sometimes it hurts. We love to travel and have been doing a lot of it lately.  I love sitting on the beach and letting the warm sunshine warm my muscles and skin.  I am so happy that for right now in my life I have the ability to get out, explore, and understand that this disease doesn’t control me.

I have a lot of really funny friends, who probably have forgotten I have Lyme. Sometimes I don’t feel like doing much more than reading a great book. And that’s okay. I don’t take much time for being sick.

Lyme isn’t my life.  My life is so much better than something so tiny. I might have Lyme disease, but Lyme does not have me.

Live… Live well… Live free!

Don't miss anything!

Enter your email address to subscribe to this blog and receive notifications of new posts by email.

Join 7,065 other subscribers

Click to rate this post!
[Total: 0 Average: 0]

18 thoughts on “Overcoming Lyme Disease by Taking Away Its Power.”

  1. Well done on bagging a husband who`s worthy of all your love. And of growing an attitude that smacks the tough stuff right where it hurts.

  2. Pingback: Wordless Wednesday – Lyme Sucks! | Morning Tempest Studios

  3. Pingback: Important information about Lyme disease | Dancing with Fireflies

  4. Pingback: You were looking for WHAT? ( The fun and oddball search terms people used to find my blog ) « Dancing with Fireflies

  5. Pingback: Life with Lyme Lyme Light #7: Just a Little Touch » Life with Lyme

  6. Pingback: May is Lyme Disease Awareness Month « Dancing with Fireflies

  7. Hi Crysta! I just wanted to throw my voice in here! I’ve been battling with fluid accumulation in my knee for over 6 years now and I completely empathize with the feeling you have when you go to bed not knowing what tomorrow holds as far as pain or mobility and such. It’s one of the most frustrating feelings I have ever known. I just had surgery to remove a cyst bigger than the size of a baseball and have just started treatment for Rheumatoid Arthritis again.

    I also wanted to let you know that I appreciate your understanding of the disease! When I worked as an office manager for an Infectious Disease office on the east coast, we had so many doctors and patients calling us saying that they needed their Lyme’s medication to be managed by someone. Many people do not understand that once you have a positive Lyme’s test, it will always be positive since you are testing for the antibody. And, while Lyme’s can cause so many other diseases – such as the ones you suffer with – continuing treatment for Lyme’s will not help these. You have to be treated for the disease itself!

    Keep battling and keep that positive attitude! I may need to come here and feed off of it every now and then!

  8. Pingback: Lyme and my Brain – ✈️ Dancing With Fireflies ☕️

  9. Pingback: Dancing With Fireflies -5 Things I Wish My Friends Knew

  10. Pingback: Dancing With Fireflies -Lyme Links

  11. Love, love, love your perspective! I was just talking to my mom abou that person I used to be. The one that was able to complete complicated math problems in her head but now gets confused over a simple math problem. I have to pull out a calculator. Seriously. For something as simple as 48 divided by 4. Come on! Spelling too. I was in spelling bees in school. I was quite good. Grammar. Writing. What have you. Neurological problems are my worst symptoms. Anyway, I’ve been battling the beast with nutrition primarily, but the neurological garbage keeps me offline most of the time. I do so enjoy to catch up with you when I have the opportunity though! We’re so often on the same page. Thank you for sharing your journey with us. So refreshing as always!

    1. Dancing with Fireflies

      Neuro symptoms are the worst for me too. I can understand the pain, but losing things and feeling “dumb” makes me think I am losing my mind.

      I think in this life, we are all on a journey of some kind and it is nice when we cross paths with familiar faces.

  12. Pingback: Ugly Lyme ⋆ Dancing With Fireflies | Live Beyond Your Diagnosis

Leave a Reply

This site uses Akismet to reduce spam. Learn how your comment data is processed.