status Lyme Disease Check-up

Twice a year I get to go see my doctor and see what’s going on with my Lyme Disease. Sometimes those visits leave me feeling pretty frustrated. Not this one.

When you live with Lyme Disease like I do, for as long as I have,  you eventually come to terms that this is your life and you can either feel hopeless or find hope.

I’ve been hopeless. In those years I struggled with the daily pain, scary palpitations, and even considered how much longer I would be able to keep living with that amount of pain and despair.  Lyme Disease isnt Real

I had drugs that put me to sleep, drugs that kept me up.  I took meds to help my joints that hurt my liver. And meds to help my liver that made me sick.  I went off everything and eventually back on again.

Chronic Lyme or Late Term Lyme is a life disease. It sucks the life out of you just like the tick that bit you sucked the blood from you to feed itself.

For the last two years I have been in testing with a new doctor that I highly respect.

I walked into his office 2 years ago with tremors so bad that I struggled sometimes to sit still. I was too weak to walk far, too tired to stay awake all day without a nap. I was in pain every day.  I was depressed and feeling awful about myself.

I came to him at my heaviest. My weight had gotten out of control.  I’d gained over 25 lbs in 2 years. Nothing I did was helping.  The more I exercised the worse I felt for days or weeks after. I barely ate, and yet the scale betrayed me.

Yesterday I arrived cautious about the visit. But left feeling like I was starting to see the best days.

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I lost 15lbs!

Since my last visit, I had lost 15lbs and my doctor actually clapped for me.

I still have meds to take, but the right ones this time.

I take a thyroid pill in the morning along with a beta blocker for the palpitations. Celebrex and 2 epilepsy pills at night for my tremors and to keep the pain down.

My hair is long and shiny again, after going through phases where it felt out in clumps. I can actually grow my nails and my skin is bright and healthy.  I really don’t know that I can ever have said that.

I have been taking Krill oil pills and I get B12 injections every 2 weeks.  Both have reversed my exhaustion and cleared my foggy head.

Sure, the pain is an issue from time to time. But it is manageable now and I have ways of dealing with it.  Hot Epsom bath soaks with a few drops of lavender not only help my pain but start my day off relaxed and ready to deal with stress.

Stress is a difficult thing to deal with for most Lymies.

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I can do this!

Life with Lyme Disease is difficult.  I struggle with knowing that 2 of my children have began to show signs that this disease is actually transmittable to them when I was told for many years that it wasn’t.

But I can do this.  I’m not giving in just yet.

This year was one of my best check-ups.  My doctor is great and I know I owe my health to his willingness to keep working on it and trying new things.

He cheers for my success and encourages me to keep up with physical therapy and helping me to get stronger in my body because that is how I am going to keep fighting this disease.

Love, Crysta - Dancing With Fireflies

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