Hi everyone, I just wanted to take a few minutes to talk about Lyme disease and how I am so thankful that Lyme disease research has taken steps out of the dark. I've had long term Lyme disease probably my whole adult life. It wasn't until by chance a woman with terrible muscle control who was almost crippled met my mother who asked how she was told my mother about Lyme Disease.. and a few phone calls later I was at my doctor's office being tested. At last I had an answer to what was wrong with me.
That was 14 years ago. Even my doctor at the time had no ideas on how to treat me, what would be next for someone with my stages, or if it were possible that I passed this down to my 3 children.
Today Lyme has become a real disease with real teams of doctors searching for solutions. Today there are books, articles, websites, and gatherings of people with advanced Lyme disease. No longer must I sort through the chatrooms filled with.. sorry.. some pretty strange people, in order to ask ” is this normal? ”
At one point I was hopeless.. especially after a 2 hour phone call from ” the Lyme Disease Association ” chairperson who basically told me I was infested with a highly advanced race of aliens and I should pay her to be my guide and join her group at 30 dollars a week, so that I might live symptom free.
I know I will never be symptom free. But I am ok with that, I know that I am going to be alright and I am always thankful to meet others creatively coping with long term issues.