Lyme Disease moves into the light.

Lyme Disease moves out of the darkness and into the lightHi everyone, I just wanted to take a few minutes to talk about Lyme disease and how I am so thankful that Lyme disease research has taken steps out of the dark. I’ve had long term Lyme disease probably my whole adult life. It wasn’t until by chance a woman with terrible muscle control who was almost crippled met my mother who asked how she was told my mother about Lyme Disease.. and a few phone calls later I was at my doctor’s office being tested. At last I had an answer to what was wrong with me.

That was 14 years ago. Even my doctor at the time had no ideas on how to treat me, what would be next for someone with my stages, or if it were possible that I passed this down to my 3 children.

Today Lyme has become a real disease with real teams of doctors searching for solutions. Today there are books, articles, websites, and gatherings of people with advanced Lyme disease. No longer must I sort through the chatrooms filled with.. sorry.. some pretty strange people, in order to ask ” is this normal? ”

At one point I was hopeless.. especially after a 2 hour phone call from ” the Lyme Disease Association ” chairperson who basically told me I was infested with a highly advanced race of aliens and I should pay her to be my guide and join her group at 30 dollars a week, so that I might live symptom free.

I know I will never be symptom free. But I am ok with that, I know that I am going to be alright and I am always thankful to meet others creatively coping with long term issues.

 

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13 comments

  1. I saw that House episode too – made me laugh (but always all of them do). Am thankful as well for the attention lyme disease gets. But there are still so many unanswered questions. May I ask you one and maybe you can answer from experience: Is there any proof or do you think that you passed on LD to your kids? Am thinking of getting some little ones myself, but am scared to present them with what I had to fight now for quite a long time.

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    • As of right now, there’s no proof that it can be passed down. I’ve been in constant touch with my childrens’ pediatricians about it. I’ve also talked to my doctor about it and so far.. nothing. However, my middle son did contract Lyme from an unknown cause when he was about 9. He now tests positive for being a Lyme carrier. They couldn’t promise me at the time that he didn’t get it from me, but did try to make me feel better by saying there was no solid proof.

      I’d say that the facts have said that the disease can’t be passed down. And I am holding on to that for dear life. I hope that helps. Thanks for reading!

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  3. Thank you for your post. I have been recently diagnosed with Lyme disease and co infections and I’ve had symptoms for close to 3 years now.

    I notice you mentioned towards the end of your post that you are thankful with meeting others creatively coping with this ailment…. I actually just started my very first blog page yesterday and I’ve always been a rhyming/lyricist and I noticed that by expressing my journey of Lyme through creativity such as lyrical poetry it has helped ease a bit of mental anguish we get from Lyme. So I mutually agree that creativity is a must for this ailment. Anyways, it’s nice to meet you and I love connecting with others in a similar path such as myself.

    I wish you light and love on your journey to wealth in health.

    Xoxo,

    Jackie

    Liked by 1 person

    • Thank you Jackie for your lovely words. Lyme is brutal but it isn’t the end. I believe that we all have something to battle, and for some like myself, Lyme is that battle. I choose to fight with my words. Good luck with your blog. It is a rewarding adventure.

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