Rage against Lyme



I read this article about a woman with Lyme Disease in California who is suffering terribly and has stated that her son also has the disease. Even though he is only a child, she says that he suffers from terrible leg cramps and attention issues that cause him to do poorly in school and is allowed to miss out on certain school events due to his condition that was passed on from her. And this at first made me pause and feel a pinch of concern for my own three children and their health. However I had to force myself to remember that I have amazing doctors that have done a lot of research, along with my children’s pediatricians who have all reminded me that there is no data ever supported to say that Lyme can be passed on to our children. It’s a fear.. not truth backed up by facts.

Sadly, there are many children living with Lyme Disease and with quick action by knowledgable doctors, they are treated and go on to live normal Lyme free lives. The problem comes in when they are not treated and the disease goes on to live in the body for many many years. Then, like any other disease left untreated the problems really become more serious. However, perhaps I am a jerk.. and I can acknowledge this. But there are too many parents looking for a reason that their children aren’t living up to their potential. In this article, the woman states that she struggles to even get up and make dinner for her family and has a hard time walking out to the mailbox. Perhaps her son isn’t sick at all, but looking for a way to bond with his mother and parents who have found a devilish disease to claim as a reason that their child isn’t doing well.

There are many of us who live with Invisible diseases. Lyme hurts. It’s a painful, frustrating, scary disease to have. But what seems to be the worst symptom of Lyme Disease is fear and blame. You can’t live a life of living in your pain, walking around with a binder full of reasons not to live the life you want. You can’t fully live, when you are weighed down by something that has no cure. No amount of medicine is going to fully take it away. Instead of living FOR the disease, LIVE and know that when your hands are swollen, those annoying muscle spasms are getting on your last nerve for the day, or you are just tired, that you have a reason to have a little rest, an extra cup of coffee before your walk.

We are the lucky ones, those who know the answer to what is happening to us. Whenever I get a little down about my future with Lyme Disease, I look to this poem by Dylan Thomas and find my will to fight harder for the life I want.

“Do not go gentle into that good night,
Old age should burn and rave at
close of day;
Rage, rage against the dying of the light.

Though wise
men at their end know dark is right,
Because their words had forked no
lightning they
Do not go gentle into that good night.

Good men, the
last wave by, crying how bright
Their frail deeds might have danced in a
green bay,
Rage, rage against the dying of the light.

Wild men who
caught and sang the sun in flight,
And learn, too late, they grieved it on
its way,
Do not go gentle into that good night.

Grave men, near
death, who see with blinding sight
Blind eyes could blaze like meteors and be
Rage, rage against the dying of the light.

And you, my father,
there on the sad height,
Curse, bless, me now with your fierce tears, I pray.
Do not go gentle into that good night.
Rage, rage against the dying
of the light.”


  1. We are friends with a young couple and the wife has Lyme Disease. They had a toddler and were contemplating having a second child, but on top of struggling to keep up with their little boy, she would have to go off her medication during the pregnancy and I think that scared her.

    It’s sad when a disease can so adversely affect the important decisions of your life. I knew very little about Lyme Disease when I first met this couple and still sadly do not know as much as I probably should. Thanks for sharing your thoughts.


    • We have three wonderful kid. 23,21, and 13. Truthfully there were days when the kids were little that I was more exhausted and ready for a nap then they were. But, I would never give up one moment with them. Fear should never have the power to take away joy.

      Going off meds can suck. There is a time when your body goes through heavy withdrawals, depending on the drug. But you can manage. It’s just a balance act of switching to more herbal safe drugs and off the heavy meds.

      It can be done and I fully understand the fear that comes with going off meds. They have a great friend in you, someone who cares enough to investigate and learn more on their behalf.

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