I don’t feel like writing today. Well, not really. I am really tired. I’ve been traveling, for many it would be a nice long weekend trip, then back to work feeling relaxed. However traveling for me, and others with a chronic illness like Lyme disease, means that at some point I am going to… Continue reading Crashing and fighting back
There’s a quote from someone whose name has been lost and yet he or she made such a strong statement that it moved lives. It simply states “Life is not measured by the breaths you take, but by the moments that take your breath away.” How many moments can you look back on right now… Continue reading Turning pages of an amazing book
The last few weeks have been extremely stressful and emotional. The anniversary of the death of someone I loved, along with the impending death of a parent is making life a little hard. August just isn’t my month. I know I’ve been fighting a touch of depression. I’ve done my best to try to rest as much… Continue reading Lyme and Grief make for a painful cocktail
There’s been a lot of talk about Lyme disease after a few celebrity voices have come forward speaking about their experiences with this complicated disease. I read each one, hoping that one of them will somehow tell me something I don’t know. I hope that perhaps one of these celebrity voices with their money and… Continue reading Overcoming Lyme Disease by Taking Away Its Power.
Lyme disease feels like living with a Magic 8 Ball. You really never know what you are going to wake up with in the morning. Sometimes you get lucky and it tells you to try again tomorrow and you have a really great day. Sometimes you get the iffy answer that you are just going… Continue reading Lyme disease feels like living with a Magic 8 Ball.
Check out this article! March 26th, 2011; Vol.179 #7 Tired, sure, but is it from Lyme disease or chronic fatigue? A scan of spinal fluid proteins reveals distinct signatures for two conditions By Nathan Seppa March 26th, 2011; Vol.179 #7 (p. 12) Proteins found in the spinal fluid may serve as biomarkers to… Continue reading Chronic Fatigue and Lyme Disease study
Living with Chronic Lyme Disease is sort of like living with the Mad Hatter. You never know what you are going to wake up with, what’s going to be thrown at you, or when you are going to suddenly feel like you have been stomped on. Some days are just fine, the aches and… Continue reading Thoughts about living with Lyme Disease
May is Lyme Disease Awareness month. Simply put, Lyme sucks. I was diagnosed with Chronic Lyme disease 12 years ago, after many years of asking “what’s wrong with me?” Finally I had an answer, yet the answer was and still in just as confusing as not having a diagnosis. Living with Lyme disease is… Continue reading May is Lyme Disease Awareness Month
In honor of May’s Lyme Disease Awareness Month, I wanted to share a little bit more about this disease so that for those of you out there who are looking for answers or searching for home might find something comforting. Every day new discoveries are being made about Lyme disease. We will continue to fight… Continue reading More facts about Lyme Disease.
Lyme Disease has a lot of misunderstandings surrounding it. In fact, there are a lot of people who have no idea at all what Lyme Disease is and how wide-spread this epidemic really is. Living with Chronic Lyme, I’ve read through the numbers, looked at the studies, done tons of research to try to find… Continue reading Important information about Lyme disease
When I was younger, before I was diagnosed with Lyme disease I was losing a battle with the Lyme Monster in a war I had no idea I was fighting. Lyme is evil, there is no other word for it but evil. Because it’s not just a disease of one area, you never know what’s… Continue reading The Lyme Monsters vs Who I am
One of the issues I have due to having CL is that my brain has suffered some neurological complications. I often have numbness in my hands or random other places, pain that pops up out of nowhere, weakness that comes on fast, visual disturbances, stiff neck, and severe headaches. Some of the more frustrating issues… Continue reading The trouble with words and Lyme
I read this article about a woman with Lyme Disease in California who is suffering terribly and has stated that her son also has the disease. Even though he is only a child, she says that he suffers from terrible leg cramps and attention issues that cause him to do poorly in school and… Continue reading Rage against Lyme
Every May I try to take some time here on Dancing with Fireflies to talk about a topic that is very close to me, Lyme disease. Since being diagnosed in 2002 with Chronic Lyme disease, I have been through the highs and lows with living with a chronic illness. I am truly thankful… Continue reading Crazy Lyme talk on Facebook.
It wasn’t so long ago that even I started to think that the way I was feeling was all in my head. Doctor after doctor had a different answer to exactly why as a teen and young adult that I was constantly exhausted, forgetful, woke with such stiffness in my muscles and joints that you… Continue reading A day of Visibility – My Lyme Story